Posts tagged ‘cyclodextrin’

April 17, 2012

Parents Fight FDA & Niemann-Pick Type C

Addison and Cassidy Hempel have Niemann-Pick Type C, a fatal genetic disease sometimes called “childhood Alzheimer’s “. They have been fighting the FDA for the use of cyclodextrin, which may not cure their twins but holds promise. Good Luck!

http://www.delawareonline.com/article/20120417/HEALTH/204170308/Parents-battle-system-twins

 

March 6, 2012

Parents Fighting FDA for Drug Approval to Treat Stricken Twin Daughters

Marieann-Pick Type C disease is a rare disorder sometimes called Childhood Alzheimer’s Disease. A simple compound holds some hope but the FDA is in the way.God Bless Addi and Cassi Hempel & their fight!

http://www.rgj.com/article/20120306/NEWS/303060007/1002